Just doing my best over here to chronicle my chronic condition with alliteration, humor, and a whole lot of spoons!
Since we met over a year ago, we found that even though our initial diagnoses were different, we face a helluva lot of the same challenges on. the. daily.
The sounding board of not only our friendship, but that of our parents (they are caregivers in both of our situations, #LuckyToHaveEm) plus our siblings too! Everyone in our tiny family community “gets it” more than literally anyone else; and that’s just how it is.
There's a lot of good information for those newly diagnosed with CCM OR for family/friends to understand a bit more OR general good advice for chronic illnesses OR ya' know being jealous of brain surgery (yes I'll admit I was, until I realized that was ludicrous).
I had a birthday party and it was epic; though likely not for the reasons you think.
We talk about a lot in these next series of videos, in relation to our very seperate experiences with CCM.
After my brain injury, it's very difficult to have a personal practice, let alone engage in rituals, classes, and events like I once did. This is how I decided to Tim Gunn it and 'make it work'.
