Just doing my best over here to chronicle my chronic condition with alliteration, humor, and a whole lot of spoons!
All tagged living in the moment
There's a lot of good information for those newly diagnosed with CCM OR for family/friends to understand a bit more OR general good advice for chronic illnesses OR ya' know being jealous of brain surgery (yes I'll admit I was, until I realized that was ludicrous).
I needed to learn that while I can’t fix my daughter, I can be present with her, I can be there, hold her hand, help her maneuver through this new “normal” that is her life and ours.
I weened off of my neuro meds to see what my baseline is (or what symptoms are due to the hemorrhages), and also because I didn't know what side-effect was related to which symptom.
