Just doing my best over here to chronicle my chronic condition with alliteration, humor, and a whole lot of spoons!
Talking about my costume, and the awesomeness that came with being Elton, this year doesn’t do it justice.
Well it’s that time of year again that I relive my most intense moments, and look back at the relative shitshow of symptoms that have multiplied and taken my life hostage these past three years.
I made this video for Amber Karnes and folks at https://bodypositiveyoga.com/ about how I navigate my disability, chronic illness, and chronic pain. I hope you get something from it!
That would be my neurologist, she’s great. She listens intently, reviews my scans with me, and often has to remind me “if you have brainstem surgery, you will die”, not in a pessimistic way—but very realistic and necessary for me to hear.
This is an issue I never even considered before I became disabled in 2016. No judgement here if that’s you too, but if after reading this short and sweet diddy...if it hasn’t at least opened your mind a bit about how absolutely little disability is portrayed in the media (and usually it’s seen as a “bad” or “devastating” thing)—then I don’t know if I can help. But I’ll try!
Hi BFFs! I’m still here!
Tis’ the season to be blogging I guess! Have you heard of Blogmas? I’m totally not doing it.
