Just doing my best over here to chronicle my chronic condition with alliteration, humor, and a whole lot of spoons!
All tagged symptoms
Hi everyone! It's so good to see you here. I am writing my blogs now with dictation! Just look at my set up here, I've got a MacBook Pro, a Bluetooth keyboard that is single-handed and backlit, my adaptive mouse, my assistive bar for my hands to rest on, and my big ass monitor.
As I sit here, propped up on a couch, typing into my Notes on my phone with my money thumb (my left thumb that does all the typing), I realized I haven’t given a health rundown in about a year!
Well it’s that time of year again that I relive my most intense moments, and look back at the relative shitshow of symptoms that have multiplied and taken my life hostage these past three years.
I couldn’t picture what my 2-year brain-a-versary would look like a year and a half ago.
To be absolutely, completely honest, I can’t say that I’m doing a whole lot better than I was in 2016 either.
But, when I really thought about why I’d want to celebrate my life getting flipped, turned upside down (announced on social media link), it all comes down to this: I listened to my body and I went in.
It’s so simple, but it obviously turned out to be a really big deal.
Trust yourself, your body always knows what’s up.
I needed to learn that while I can’t fix my daughter, I can be present with her, I can be there, hold her hand, help her maneuver through this new “normal” that is her life and ours.
I wholeheartedly believe in comfort, and cleverness especially, in a good Halloween costume and this did not disappoint...Also, it has come to my attention that I need to define some terms that I use a lot in my writing.
